Transcript, Meeting 2. Opening Remarks and Session 1. DR. GUTMANN: I would love to welcome everybody. I’m president of the University of Pennsylvania, and I have the privilege of chairing the Presidential Commission for the Study of Bioethical Issues. On behalf of myself and our vice chair, Jim Wagner, who is the president of Emory University, I’d like to welcome you to our 2. Let me begin by noting the presence of our designated federal official who is also Bioethics Commission executive director, Lisa M. Bioethics Discussion Blog What have you been reading, hearing or TV viewing that has provoked some feelings of comfort or concern about what is happening in the world of medicine. For example, if what you tell me suggests that you intend to harm yourself or place someone else at risk of serious harm. Lisa, please stand so we know who you are. We all do, the commission members. And I’d also like our commission members to go around and introduce themselves. Let me begin with Anita. TRANSCRIPT Meeting 20 Opening remarks and Session 1.pdf Transcript DR. GUTMANN: I would love to welcome everybody. GUTMANN: Clement, do you want to take a shot at that because it really is something you’ve had a lot of experience and thought a. Hastings Bioethics Forum publishes commentaries from a range of perspectives on timely issues in bioethics. You Give Me Fever: Pandemic, Passion, and Public Health in 1940s Gotham Read More > April 10, 2006 When I’m 64 (and Then Read More >. Search Films Documentary Animation Interactive Education Sign in National Film Board of Canada. What We Talk About When We Talk About Clone Club has 55 ratings and 19 reviews. Goodreads helps you keep track of books you want to read. Start by marking “What We Talk About When We Talk About Clone Club: Bioethics and Want to. If you want to build a relationship, you must first get a girl to talk to you. How to Know if a Girl Doesn't Like You How to Ask a Woman Out Over the Phone If you want to build a relationship, you must first get a girl to talk to you. DR. I’m vice provost for faculty at the University of Pennsylvania and professor of law and philosophy. DR. MICHAEL: I’m Nelson Michael. GRADY: Christine Grady at the department of bioethics at the NIH . HAUSER: Stephen Hauser, chair of neurology at UC San Francisco. DR. KUCHERLAPATI: I’m Raju Kucherlapati. I’m a professor of genetics and medicine at Harvard Medical School. DR. SULMASY: Dan Sulmasy, the department of medicine and Divinity School at the University of Chicago. DR. ATKINSON: Barbara Atkinson, the planning dean for a new school of medicine at University of Nevada Las Vegas. DR. GUTMANN: And is Nita Farahany on the phone? Well, Nita is sorry she can’t be here, but not too sorry because she just delivered a wonderful, young - -obviously, young member- -a wonderful little girl into the world, she and her husband, named Estrella. Otherwise will be known as Ella. So we all congratulate Nita, and she may be on the phone later in our meetings. Case Studies Case studies are an important tool in bioethics, especially in practical bioethics where the focus is on real issues in real life and real time. Patient Modesty: Volume 57 Humility and Humiliation: Continuing on with the patient modesty discussion. If you want me as a patient, they need to make me feel safe and respected. Listen to my concerns and find a way to make it happen, not dismiss At. Streaming resources for Susan Huycke Discussions in Bioethics: If You Want a Girl Like Me. Links to watch this Canada Short Movie online. Streaming resources for this Susan Huycke Short Movie Discussions in Bioethics: If You Want a Girl Like Me. I’m going to say a few words of introduction and then ask Jim to say a few words. We have a lot of work to do in this one and a half days. As an advisory body to the President of the United States, our commission considers ethical issues with a particular focus on U. S. But it’s been the case for many, many decades and it’s only gotten more evident that bioethical issues are global in their nature and in their reach. And you can see that just by looking at U. S. The most obvious is the Ebola epidemic which affected our country after it affected very seriously and is still affecting three countries in west Africa. The ability to distinguish between our- -what’s in our nation’s interest and what’s in the interests of the world is increasingly difficult and perhaps a futile exercise in the case of bioethical issues of health. We have turned our attention, beginning at our November meeting in Salt Lake City, to U. S. There are many other issues. We acknowledge that robust and reflective deliberation about complex ethical challenges in public health emergencies is not best done in the midst of an epidemic. That is, the whole point of deliberation and education is to prepare us for confronting epidemics speedily, the way they must optimally be confronted. It’s not that one stops deliberating, but one does pause for a moment and act very quickly. Deliberation is about discussion and action. It’s not just discussion. But to deliberate, to begin deliberating when there is an epidemic is the worst possible way of engaging in deliberation other than not engaging it at all. So the purpose of our commission is to think, deliberate and issue a set of recommendations for how we can best learn from what we did well and what we did not so well in a serious crisis situation. By the way, the crisis is not over. I was pleased to see that the front page of The Washington Post is continuing to cover what is happening with Ebola, and I couldn’t help but think that even though it subsided in Sierra Leone, Liberia and Guinea, the three west African countries which have been hardest hit by far, if any three states in the United States had the ongoing incidence of Ebola that those three countries now have, we would still be in crisis mode. So given the global nature of ethics and the global nature of the Ebola crisis, we are still facing a crisis. Not to mention, which we can in our deliberations, measles in the United States which underlines the importance of education and deliberation in an ongoing way that one can never take for granted protections. And when one does and thinks that vaccines which are effective are no longer necessary for a subgroup, that’s a problem. So we need to continue to think about that as well. I believe that the overarching theme of all these discussions is that major infectious disease epidemics are a matter of U. S. We are obligated to engage in such devastating outbreaks from a global justice perspective, and we’re also considering the ability of infectious diseases to travel in our interconnected world. It is prudent for us as a country to address epidemics at their source. It is therefore both in our humanitarian and our national interests not to wait until diseases come to our shores before we begin, and in the case of Ebola, continue to address how best to respond to them as we’re doing today. A very important theme is that we as a country and we as professionals and we as a public best respond in partnerships with others. And now returning to today’s meeting, I want to take and then I’ll it over to Jim to say a few words. I just wanted to preface that as a framework for how we have been as a commission deliberating and we have actually- -will spend more time doing so and extremely fortunate to have a group of distinguished guests to present to us today. I want to take just a moment to explain how we will take public comments. At the registration table, there are comment cards, but also bioethics staff members here in the room have comment cards as well. And I always like to recognize our fabulous staff, so would you all stand up and hold up your cards. So anyone who wants a card, just- -there are lots of people here within one or two people of you. Just ask for a card, write down your comment or question. Somebody will pass it up to Jim or myself, and as long as we have time, we’ll take them. And if we don’t have time, we will get back to you and answer them one way or the other. So thank you all in advance for participating in our discussion, and now our vice chair Jim Wagner. Jim, would you say a few words? DR. WAGNER: And a very few words. First of all, to commissioners, welcome, it’s good to be working with you again. To guests, those right before us and those who will be following you, welcome. It’s good to have you here. I want to reiterate your two big points, points about timing and points about scope. That with regard to timing, it is important to deliberate, not just during a health emergency but to do so ahead of time. Ebola does indeed give us a highly visible, if not currently the most lethal, but highly visible example from which to capture public interest, capture our own interest, capture government agency interest in order that we might adopt better practices for timing about our deliberations and preparation for health emergencies. And the second point you make is scope. We are very comfortable with the words “public health” and “global health,” but I think our minds imagine that there must therefore exist something else called “local health.” And, in fact, at least with regard to communicable diseases, it may be that there is no such thing as local health. And if we’re going to pay attention to ensuring our local health, it will require that we look globally and act globally. Last points I want to make, I was given some statistics. This is our 2. 0th public meeting since the commission was established by President Obama back in November of . We’ve met quarterly all around the country to discuss and deliberate on topics we’ve chosen, topics we’ve been assigned. We’ve heard from exceptional speakers. In fact, something over 2. And you guys, we guys I guess, have deliberated more than 1. Actually, our formal deliberations have to be in public, as required. We do swap some email conversation around in the off time as well, and there’s enormous work. The staff neglected to put in the equal or larger number of hours that they themselves put into this list, so we want to thank you and applaud you as well. And with that, I think it’s appropriate to get on with Meeting 2. Thank you very much. DR. GUTMANN: Well, we have a terrific panel to kick us off, and I’d like to begin with one introduction at a time and then ask each of our panelists to say a few words and after each of the panelists presents, we’ll then open it for commission and public discussion. We’re going to begin with a panel on ethical issues associated with research in the context of a public health emergency. Our first speaker on the topic is Dr. Clement Adebamowo. Did I get will you pronounce it for me, your last name? DR. ADEBAMOWO: Adebamowo. DR. Who is currently a professor of epidemiology and public health at the University of Maryland School of Medicine and adjunct associate professor at the Harvard School of Public Health in Nigeria at the Harvard School of Public Health. In Nigeria, he holds appointments- -there is no Harvard Public Health yes. In Nigeria, he holds appointments as a research scientist at the Institute of Human Virology, director of the Center for Bioethics and chairman of the National Health Research Ethics Committee. So our first speaker could not be more well suited to kick us off on this topic. He is the principal investigator for several training and research grants and contracts, including the West African Bioethics Training Program. He directs an NIH funded African collaborative center for microbiome and genomics research in Abuja, Nigeria. His research interests span research, ethics, cancer prevention and management, obesity, diabetes and metabolic syndrome and nutrition epidemiology. He’s a member of the Expert Advisory Panel on Clinical Practice Guidelines in Research Methods and Ethics of the World Health Organization and is also editor in chief of the Bioethics online journal. Welcome and thank you for being with us. Bioethics and Philosophy in Orphan Black by Gregory E. How can Sarah Manning be straight, Cosima gay, and Tony trans? Cult hit sci- fi show Orphan Black doesn. Pence violates Clone Club.
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